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Xenoestrogens are synthetic (man made) estrogens that mimic the effects of estrogen found in the human body. They disrupt hormonal activity and can be extremely dangerous. These xenoestrogens can lead to the condition of estrogen dominance in which there is “unopposed” estrogen present in a woman’s body (see “Hormonal Imbalance?”). This condition has been linked to adenomyosis.
Some examples of xenoestrogens include:
PCBs – banned from use in 1979
PBBs – can be found in plastics
Pthalates – provides durability and flexibility to plastics
Petrochemicals – byproducts of oil and gasoline
Organochlorides – dry cleaning products, chemicals used in the bleaching of paper
BPAs – used in the lining of food and beverage cans
DDT – pesticide banned from use in 1972; however still present in environment
Dioxins – released during pesticide manufacturing and combustion processes
Endosulfans – insecticide
Atrazines – herbicide
Bisphenol A – food preservative
Parabens – lotions
Ethinyl estradiol – component of birth control pills
In women with known or suspected adenomyosis, it is strongly suggested that exposure to these chemicals be reduced as much as possible. Although it is impossible to completely get away from these chemicals, a few things can be done to reduce exposure such as:
1. Do not store or heat your food in plastic containers. Use glass whenever possible for food storage and heating. Avoid drinking from plastic water bottles. To drive this point home, let me tell you a true story. I have worked in a medical lab for about 22 years as a lab technologist. At the beginning of my career, I ran the acetylcholinesterase test. Acetylcholinesterase is a very important enzyme in the body that plays a key role in the functioning of the nervous system. The test that I ran was used to pick up possible neural tube defects in unborn children (spina bifida and anencephaly). Sometimes the test worked fine, but at other times it did not. After trying to figure out the problem and getting quite frustrated, we were finally able to identify the problem. When we mixed the reagents in a plastic container, the acetylcholinesterase band did not show up on the gel and therefore the test failed; however, when we mixed the reagents in a glass container, the test worked just fine. So, something in the plastic container was reacting with the acetylcholinesterase! Kinda scary to think that a chemical in plastic can react with such an important enzyme vital to the nervous system!
2. Buy fresh and organic food whenever possible. Avoid as much processed food as you can.
3. Buy hormone free meats.
4. Avoid farm raised salmon because this can be a source of PCBs. Buy wild salmon instead.
5. Use natural/organic lotions or even make your own homemade lotions. Avoid lotions that contain parabens. Try to use makeup that is paraben and phthalate-free.
6. Use natural pesticides. I use a 50/50 mix of vinegar and dishwashing detergent, and it works beautifully!!
7. Try to stay away from birth control pills. This one is a hard one, though, since birth control pills do give some relief for patients with adenomyosis. Just keep this in mind as you go through your treatment. I did have to take birth control pills to control my symptoms during my 17 year struggle. You may benefit from taking other steps first before resorting to taking bcps.
8. If you are considering hormone replacement therapy (HRT) for menopausal symptoms, try using bioidentical hormones.
9. Invest in a good quality water filter.
It is important to understand the different types of estrogen that we are exposed to on a daily basis. There are basically three types – xenoestrogens (man-made/synthetic), human estrogen (that our own body produces) and phytoestrogens (estrogen like substances found in plants).
These estrogens are powerful and very dangerous. They can increase the estrogen levels in the human body leading to the condition “estrogen dominance”. Steps should be taken to avoid these substances although complete avoidance is impossible because they are in the environment. They can be found in products such as plastics, gasoline and pesticides. I have devoted a whole page to this subject – please check out that page for more information.
Human (endogenous) estrogen
This is the natural estrogen produced by the ovaries. The levels in the body are regulated by the pituitary gland through the action of lutenizing hormone (LH) and follicle stimulating hormone (FSH).
These are weaker estrogen like substances that are found in plants. Please see “Helpful Diet Tips” for a list of foods that contain these substances. Phytoestrogens actually help to reduce the level of estrogen in the human body, and many studies have shown a link between these substances and a lower cancer risk for estrogen dependent tumors
So What Does This Mean?
Here is a very simplified explanation. Remember that this is basic – many more hormones are involved in the proper functioning of the reproductive tract!
Adenomyosis has been shown to be estrogen dependent meaning that it needs estrogen to grow. The body has a certain number of estrogen receptor sites and constantly “fills” these sites. If they are “filled” with too many xenoestrogens, the resulting condition is estrogen dominance. Too much estrogen can lead to adenomyosis or estrogen dependent tumors. If the sites are “filled” with a lot of phytoestrogens, the estrogen levels are lower. Not enough estrogen, adenomyosis can’t survive or at least won’t progress as fast.
There is no such thing as an absolute in medicine…..
Although many studies show that the phytoestrogens in flaxseed to be beneficial, a study done at the University of Pittsburgh has shown that the phytoestrogens in flaxseed oil actually stimulate the growth of breast cancer cells. Please keep in mind that studies on any disease/disorder can have conflicting results. Based on my research, I have found many more studies showing the benefits of phytoestrogens in reducing cancer risk. However, if you have a family history of estrogen dependent cancers (uterine, breast, ovarian), please keep this in mind and talk to your doctor before supplementing your diet with flaxseed oil.
In doing research for my book, I was particularly interested in the fact that adenomyosis had been linked to a condition called estrogen dominance. This term has been coined by Dr. John Lee. It refers to a condition where there is insufficient progesterone in relation to estrogen in a woman’s body. This results in “unopposed” estrogen which has also been shown to play a role in other gynecological conditions, particularly breast cancer.
Some of the symptoms of estrogen dominance include:
Polycystic ovarian syndrome
Fibrocystic breast disease
Irregular or heavy periods
Spotting between periods
Cold hands and feet
Headaches (including migraines)
Weight gain in the hips, thighs, and abdomen
ZRT Laboratories now offer an at home saliva test that measures estrogen and progesterone levels and also gives a ratio of estrogen to progesterone. I was intrigued by this, so I decided to have my levels tested. Sure enough, my ratio came back at 67 indicating estrogen dominance (normal range is 100-500). Others who are suffering from adenomyosis who are interested in ordering this test and learning more about Dr. Lee/estrogen dominance should refer to his website, www.johnleemd.com.
I wanted to die last night. There, I said it. Ugly thing to say, right? Might even make you want to inch just slightly away from me. Feel free to. Sometimes I want to inch away from myself as well. But before you judge, try to listen to what I have to say. Assess my words with an open, empathetic heart, and think about the way you would feel if you were in my shoes. It may sound as though I am trying to pull at your heartstrings, to make you feel depressed for me and my life, but I am not. I just want you to understand what it’s like to be a woman who suffers from endometriosis. I just want you to understand. These are the realities of living with endometriosis.
Dealing With the Physical Reality of Endometriosis
Pain. Imagine your abdomen and pelvis are encased in barbed wire so that the spikes of the wire are actually piercing them, stabbing them sharply every time you move. Now imagine that the barbed wire is actually attached to some sort of electrical current that shoots electricity through the spikes, increasing the intensity of each penetration. Next, add a machine that alternates shooting the electrical spikes into the body and pulling them out again in random intervals, thus adding a surprise and shock factor to the pain. Lastly, in addition to the shocking electrical stabbing pain, there are deep, underlying waves of pain that crush and release the muscles, causing a cramp so excruciating it takes your breath away. Imagine living with that agony on an everyday basis.
I live with a veil of pain draped over my body. Not stubbed toe pain, sprained ankle pain, or even broken heart pain. The pain that I feel every day is an all-encompassing event, specially formulated to break both my body and my spirit. It is a visceral and animalistic torture that brings me to my knees in surrender. That is the reality of living with endometriosis.
Fatigue. I want you to try to recall a night during which you slept very little. Maybe you had a party the night before, or perhaps you were up doing work. Now think about the way both your body and mind felt the following day. Did you function as well as usual? Were your movements as fluid, your mind as sharp? Or did it feel as though you were moving through quicksand, your brain wrapped in cellophane? How would you deal if you felt like that every day?
I live with a crushing form of fatigue that makes my every move devastatingly cumbersome. I often feel as though I am nine months pregnant with quadruplets, constantly carrying around an enormous weight that is attached to my body, sucking whatever strength I have left. My limbs feel like they are wrapped in lead, and my eyelids covered in cement. All my body wants to do is sleep, every minute of every day, but it can’t. My life doesn’t take a nap when I do.
The Emotional Reality of Endometriosis: Depression
I wish I could say the physical aspects of endometriosis are all that plague me. Unfortunately, this is not the case. You see, for every physical malady that plagues women with endometriosis, there is an emotional component that is equally, if not more, devastating.
Guilt. Guilt is like an itchy woolen sweater that is two sizes too small: suffocating, uncomfortable, and in desperate need of being shed. It permeates the many aspects of my life and makes me miserable. I feel guilty for having endometriosis to begin with, as I sometimes wonder what I did wrong to deserve it. I also feel guilty that I cannot give my husband the emotional or physical attention he needs. I feel guilty that my close friends and family have to spend their days taking care of me when I am incapacitated and that I spend my days idling around the house while they work hard. I feel guilty for canceling plans that I made weeks ago and the lack of ability to make plans to begin with. Guilty that I cannot be a good friend to others. And guilty when I think of my children who I cannot take care of the way they deserve to be taken care of. Finally, I feel guilty that I cannot give my husband any more precious children due to the hysterectomy I had that was not even successful.
Inadequacy. Due to the symptoms of endometriosis, I often feel inadequate and obsolete. I feel like I lack the ability to do anything important, like my job, or household work. Relationships with my spouse, kids, parents, siblings and even my friends are often placed on the back burner as I struggle daily to merely exist. This inability to maintain relationships, keep my job, take care of myself or family members or even be intimate with my spouse overwhelms me with the feeling that I am incompetent, useless, and valueless. Sometimes I even feel as though my existence on this earth is pointless if I can’t be a functioning member of society. These feelings of incompetence sometimes also lead to depression, embarrassment, guilt, and rage.
Anger. Imagine being told that the agonizing pain you feel every second of every day is not real, that you are making a big deal out of nothing. How would you feel? Anger? Rage? Imagine being told that you are a “druggie” when you ask your doctor for pain medication to ease the misery you are dealing with. Anger again? Or how would you feel towards “God” or “The Universe” if you let your mind wander to the opportunities you would have if you didn’t have endometriosis? It’s hard not to be furious when you think of everything you are missing or losing due to this disease. What if you’ve tried for years to get pregnant with no success or just miscarried the child you’ve wanted all of your life. And imagine being so debilitated by your symptoms that you are unable to perform your everyday activities. How would you feel? Frustrated? Angry? That’s exactly the way I feel.
Jealousy. For me, jealousy rears its ugly head when I see other people performing activities that I am too sick or fatigued to perform. It is hard not to be jealous of a healthy person when I am stuck in bed, too exhausted to move, or lying on the couch, writhing in pain. Just seeing someone go food shopping without discomfort causes jealousy within me, as I would do anything to be able to perform everyday activities without pain. Jealousy is also inevitable when we I see other women, basking in their pregnant glow, and I know that I will never again carry a living being inside of me.
Loneliness. Yes, I am extraordinarily lucky to have a wonderful support system in my life, and I am enormously thankful for that support, but there is a profound, hollow loneliness that sometimes overwhelms me when it occurs to me that despite their best efforts, my loved ones cannot fully understand what I am going through. Even my sisters with endometriosis cannot completely comprehend my individual suffering, as every person suffers uniquely. Therefore, I am sometimes led to feel as though no one understands me, and there is no thought lonelier than that.
Loss. Endometriosis is a disease that is full of loss and mourning. On a basic level, I mourn the loss of a “normal”, illness-free life. A life that is chock-full of boring, everyday activities and errands. I am no stranger to mourning or to loss. Having a miscarriage created a deep, inconsolable hole within me that will remain with me forever. But most of all, having a hysterectomy has caused a ubiquitous feeling of loss within me as I mourn, not only the loss of potential children, but the loss of a part of my womanhood.
Depression. Oh, depression. That dark, suffocating feeling when the world looks like it has no color in it and our futures seem murky and unclear. For me, depression is caused by many different things. Being alone all the time, not being able to spend time with family and friends due to pain, fatigue or other symptoms is depressing. Excruciating pain is depressing. Feeling like my illness is misunderstood is depressing. Feeling like I need to be embarrassed of my illness is depressing. And lastly, the thought that there might not be any hope for my recovery because there is no tangible hope for a cure, that I might have to deal with the incapacitating symptoms of endometriosis for the rest of my life, is the most depressing thought of all. That is why I wanted to end my life. Yes, I contemplated suicide. Like so many of my sisters with endometriosis, I hit bottom. I was tired of the pain, tired of the despair, tired of the guilt, and tired of being tired. But mostly, I was and am, just tired of the pain.
Living with Endometriosis is Horrendous
Now that I have exposed my vulnerable and aching heart to you, my friend, you have a choice to make. I will never blame you if you choose to stay away from my complicated and sometimes depressing life. Like I said, if I had the choice, I would probably do the same. But let me say one last thing before you make your decision. Life with endometriosis is horrendous, but women with endometriosis are not. We are strong, determined women who fight fiercely and love fiercely. We try our best. We are not lazy or pathetic and we don’t give up. We may not sugarcoat the painful emotions and terrifying symptoms that we deal with. Our honesty may even frighten you. But when you meet a woman with endometriosis, you are meeting a proud, indomitable warrior. A soldier who goes into the fire on a daily basis and emerges with a thicker skin time and time again. A woman who should not be pitied for her pain, but admired for her ever-present resilience and strength. That, my friend, is who I am. Take me or leave me. It’s up to you.
Have you every heard of adenomyosis? If not, you may want to learn about this condition since it affects so many women of childbearing years. Even young men need to learn about this uterine disorder since it may one day affect their future wife or daughter. I know, it isn’t fun to talk about reproductive health in women, but it is imperative in order to help these poor women who have to deal with it on a daily basis.
Adenomyosis used to be called “endometriosis interna”. It is similar to endometriosis in that the endometrium, or the layer of the uterine wall that is shed every month in the form of a menstrual period, is misplaced. In endometriosis, the endometrial tissue is found outside of the uterus, such as on the ovaries, or rectum. In adenomyosis, the endometrium actually invades the muscle of the uterus and can be found throughout the entire uterine wall.
Both of these conditions cause extremely heavy and painful menstrual bleeding, abdominal bloating, severe fatigue due to excessive blood loss (anemia), migraine headaches, infertility, and a host of other problems. Clearly, these disorders can significantly impact the quality of a woman’s life.
Thankfully through the help of many great organizations such as the Endometriosis Foundation of America, endometriosis is finally coming to the forefront as a serious medical condition. This disorder has recently received a lot of attention due to the efforts of these wonderful groups. However, adenomyosis continues to be a significantly neglected disorder. Very little research has been done on this disorder, and the criteria for accurately diagnosing adenomyosis continues to be problematic.
I had adenomyosis for 17 years before I finally obtained relief through a hysterectomy (currently, the only “cure” is hysterectomy). Since that time, I have dedicated a large part of my spare time to education on this disorder – writing a book on my experience and starting my own website, Adenomyosis Fighters. I have also authored and sent a petition to the National Institutes of Health which was acknowledged by Dr. Alan Guttmacher, Director of the National Institute of Child Health and Development. He informed me that adenomyosis has recently been included in the scientific research that is being done at the Eunice Kennedy Shriver Institute and told me that they are always ready to accept excellent applications from outside academic institutions for more adenomyosis research.
I have started another petition that will be sent out to over 20 academic research institutions asking them to develop more studies on adenomyosis and to apply to the NIH for funding. As of now, the petition has 244 signatures, and we are looking for many more. The petition will officially close on September 30, 2015. In addition to this new petition, I am working on my second adenomyosis book which will have the most up-to-date information available on this disorder. It should be available for purchase by the end of 2015.
For more information on adenomyosis, please check out my “Adenomyosis Fighters” website at http://www.adenomyosisfighters.com. On the homepage, you will find the link to the petition on the Care2 website. Please consider signing this petition as it will help so many women who are suffering from this terrible uterine disorder. Information on my published book can also be found on this site.
I hope with all my heart that we will be able to learn what causes this disorder and effective ways to treat it soon!
For the next few minutes, I ask you to put yourself in another person’s shoes. Just imagine.
Imagine waking up in the middle of the night to excruciating pain that comes in waves, first in your lower abdomen and then moving to your lower back. These waves of pain come every three to four minutes, and are similar to full stage labor pains or kidney stone pain.
Imagine not knowing the reason or cause of this pain.
Imagine that you have no way to control this pain. The doctors have given you all kinds of medications, but nothing works.
Imagine going through this pain for five to six hours during the attack…waves of intense pain every three to four minutes which then start to move down to the upper parts of your legs. You could swear you are giving birth.
Imagine standing at the bathroom sink in the middle of all this with sweat pouring off your face and horrible nausea due to the terrible waves of pain. You can’t stand up straight because the pain is so unbearable.
Imagine holding onto the sides of the bathroom sink as you try not to faint as yet another wave of pain hits you. You see stars, and you try to position yourself so that you won’t hit your head if you fall.
Imagine an intense wave of pain throughout your belly as you grab onto the toilet to vomit…multiple times.
Imagine lying on the bathroom floor in the fetal position as you cry out of frustration while you are forced to endure this nightmare.
Imagine having menstrual periods that last ten to fourteen days per month with spotting on the other days.
Imagine having so much blood loss that you soak a pad in an hour.
Imagine how tired you feel because of the chronic anemia.
Imagine that you pass blood clots that are as big as the palm of your hand.
Imagine that you have so much abdominal bloating that you look three to four months pregnant.
Now imagine that this happens to you at least once a month.
Imagine trying to get pregnant while enduring all of this, but it never happens. You never have children.
Imagine the anxiety that you feel because you never know when an attack will hit you. You make sure you are always close to a bathroom. You panic as you drive down the highway and start to feel pelvic pain.
Imagine going through this while trying to hold a full-time job. What will your boss or co-workers say when you take another sick day?
Imagine trying to be a parent while suffering from this uterine condition. You can’t take a sick day as a parent.
Imagine that you undergo numerous invasive tests only to be told that they can’t find the cause of your problems.
Imagine being told that you need to see a psychologist because of this problem, and you are put on antidepressant medication for your depression and anxiety.
Imagine your friends, acquaintances, and “experts” telling you that “it’s all in your head” because the doctors can’t find a cause of the pain.
Imagine going through multiple surgeries but the pain and heavy bleeding always return.
Imagine having an endometrial ablation and being told that this will certainly stop the bleeding. The bleeding returns 24 hours after surgery.
Imagine having a hysterectomy before finally obtaining a correct diagnosis…after seventeen years of unbearable physical, mental and emotional pain. It was adenomyosis.
Imagine a doctor telling you that he doesn’t know anything about adenomyosis. He tells you to “google it”.
Just imagine. Imagine the frustration. Imagine the pain. Imagine your quality of life during that time.
Did you know that adenomyosis has been linked to estrogen dominance? Estrogen dominance occurs when there is not enough progesterone in a woman’s body to counter the effects of estrogen. This is a fairly recent finding. In the past, doctors would do simple hormone testing and as long as the estrogen and progesterone levels fell into a specific range, the assumption is that everything was normal. However, research has shown that the ratio of progesterone to estrogen is vitally important. These two hormones can be in the “normal range” while the ratio between the two can actually be abnormal.
So, why do some women have estrogen dominance? Well, there can be many reasons, but one important one is the excessive exposure to dangerous chemicals in the environment that act like estrogen in the body. These chemicals are called xenoestrogens. They are referred to as endocrine disruptors as they can easily disrupt the delicate hormonal balance in a woman’s body.
There are many different xenoestrogens in the environment, and it is virtually impossible to avoid all of them. Some examples include petroleum products, pesticides, and herbicides. About a week ago, I walked into an office building and saw a sign in the grass which said that the lawn had been treated. So, we literally get bombarded with them the moment we walk out the front door.
However, we can reduce our exposure. Pthalates and parabens are commonly used in cosmetics, and these two chemicals are known xenoestrogens. Since I love makeup and wear it all the time, I decided to do some research on chemical-free makeup. I have found that Bare Minerals does not contain pthalates or parabens, so I ordered their foundation and lipstick. I absolutely love it! It covers my blemishes and sunspots so well, and I have actually had strangers comment on how good my face looks! The Moxie lipgloss is my absolute favorite – I can just feel the moisture soaking into my lips. So, I have thrown away all my Maybelline and CoverGirl cosmetics and have become a loyal customer of Bare Minerals.
I was super-excited when I saw a segment on Fox News several days ago in which a doctor urged women to explore using chemical-free makeup. He explained how these xenoestrogens were endocrine disruptors and how it would be in the best interest of our health to go chemical-free. I have a feeling that this line of thinking is going to become quite popular as people begin to realize the dangers of parabens and pthalates.
There are so many choices for makeup out there. If you suffer from adenomyosis, it would be a good idea to check out makeup that is pthalate- and paraben-free as this will reduce your exposure to the dangerous xenoestrogens. For an in-depth discussion about estrogen dominance, xenoestrogens, and adenomyosis, be sure to look for my upcoming book which will be out by the summer of 2016.
Big hugs to all my adenomyosis sisters and warriors out there!
I hear you.
I know what it is like to have abdominal pain that is so severe you can’t stand up straight…pain that feels like someone is reaching right into your abdomen and squeezing as hard as he/she can….pain that causes intense nausea and vomiting…relentless pain that doesn’t let up for hours. I feel your pain.
I know what it is like to bleed continuously for over two weeks…bleeding that is so heavy you soak a maxi pad in less than an hour….bleeding that causes you to become so weak that you can barely get out of bed to go to the bathroom….so much blood loss that you get migraine headaches and pass clots as big as the palm of your hand…bleeding that causes so much fatigue that you can barely make it through the day, many times skipping meals because all you want to do is sleep. I feel your weakness.
I know what it is like to go to a doctor and being told that it’s all “normal”….being told that you need to see a psychologist….being brushed aside because you’ve been to the doctor multiple times with the same complaint…having people think you are making it all up because the doctors can’t find a cause of your pain…hoping that the doctors find cancer – just so you can finally have a diagnosis…living without a diagnosis for over ten years or even longer…living with people around you that have no sympathy for your situation. I feel your frustration.
I know what it is like to never know when an attack will hit you….wondering if you will make it to your destination before the pain starts…waiting in an airport and looking around to see if a bathroom is nearby in case you need it…getting stuck in rush hour traffic and having a panic attack because you are afraid the pain might start while you are stuck…trying to “suck it up” so you can get through your day and not take more sick time. I feel your anxiety.
I know what it’s like to wait for yet more gynecological tests….waiting to see if they will find something life-threatening….waiting for hours for your surgery to begin…staring at the ceiling all night before the surgery, unable to sleep…the mild nausea and racing heart as you wait for the surgical techs to bring you back for yet another surgical procedure. I feel your fear.
I hear you. I hear you loud and clear because I’ve been through it. Women who suffer from adenomyosis and endometriosis are true warriors. They know real pain. They know real frustration. They know real anxiety. They know real fear. When you are in the presence of these amazing women, know that you stand among some of the strongest women alive. There is nothing or no one who will be able to take these women down after struggling with adenomyosis. We will defeat this disorder. It’s going to be a long and tough mountain to climb, but I am determined to climb it and won’t stop this fight against adenomyosis until my final breath. We will find a cure! Hang in there, warriors!
*Adenomyosis: A Significantly Neglected and Misunderstood Uterine Disorder is now available on Amazon. See my author website at http://www.mariayeager.com for more information.
Due to many requests, I am currently working on publishing my book, “My Hormones Are Killing Me – My Struggle With Adenomyosis and Estrogen Dominance” as an e-book. I have to re-format the book for Kindle, so I am basically reading it as I re-format. It was originally published in 2012. This book is a re-cap of my seventeen year struggle with the disorder which finally ended in 2007 after my hysterectomy. Since writing this book, I have done a lot of research on the disorder and have recently published my second book which looks at all of the current knowledge and research. So, today I know much more about adenomyosis than I did back in 2012.
As I was re-formatting today, I read my ultrasound, sonohysterogram, and hysteroscopy notes that were done when I had a uterine polyp in the early 2000s. The ultrasound, which was done first, noted an endometrial thickness of 5 mm. Thickness of the endometrium varies throughout a woman’s cycle, but in general, this falls into the normal range. Please note, as I discuss in my current book, that it has now been found that it is of utmost importance to look at the thickness of the junctional zone, or JZ, in particular on MRI to identify adenomyosis. I’m quite sure that at that time, they didn’t look at the JZ.
My sonohysterogram report (done after the ultrasound) stated that my endometrium appeared normal with a thickness of 1-2 mm. A thickness of 1-2 mm usually is seen during menstruation, and I wasn’t menstruating – I was mid-cycle. That was a big red flag to me as I re-read the report. Other than the polyp, the report stated that everything appeared normal.
However, about a month after the sonohysterogram, I had a hysteroscopy to remove the polyp. The hysteroscopy report stated that I had a bicornuate uterus, and the surgeon was not able to accurately visualize the left horn of my uterus. The polyp was successfully removed but it begs the question: Why wasn’t the bicornuate uterus picked up by sonohysterogram? A sonohysterogram is touted for being about 90% accurate for picking up uterine abnormalities of all kinds, including a bicornuate uterus.
So….1-2 mm endometrial thickness and no mention of a bicornuate uterus? Hmmm. As you can see, I question everything. I have learned to do this not only because of my ordeal with adenomyosis, but also because I worked in the medical field for about twenty years. Although people in this field are quite diligent, we are all human. Mistakes are made in the medical field, and doctors and radiologists are not immune to this problem.
This also drives home the point that I have made in previous posts and on my website, Adenomyosis Fighters. The ability to be able to properly diagnose adenomyosis is entirely dependent on the skill of the doctor or radiologist. If the doctor who performed the sonohysterogram failed to pick up a bicornuate uterus, do you think he would be able to pick up adenomyosis? A bicornuate uterus is a rather large and much more obvious abnormality compared to adenomyosis.
It is imperative that doctors and radiologists update their current knowledge on adenomyosis. Even though I’ve said this over and over again, to this day, I STILL hear patients tell me that their doctors don’t know much about adenomyosis. In my most current book, I point out the following statement made by researchers Owalbi and Strickler:
“Adenomyosis is the addendum to textbook chapters on ectopic endometrium: it is a forgotten process and neglected diagnosis.”ª
To learn more, please visit http://www.adenomyosisfighters.com.
ªOwalbi, T. O. & Strickler, R. C. (1977). Adenomyosis: A Neglected Diagnosis. Obstetrice and Gynecology, 50(4), 424-7. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/904805
I have recently started to work on a new book on endocrine disrupting chemicals, or EDC (also known as xenoestrogens). These chemicals have been implicated in the development of adenomyosis, but they have also been implicated in other reproductive disorders and cancers. I wanted to publish an in-depth review of these dangerous chemicals, but little did I know that I would be embarking on a huge project that is also quite disturbing.
I like to use PubMed through the NIH to get reliable information from actual clinical studies. The first study I read was “Mixtures of xenoestrogens disrupt estradiol-induced non-genomic signaling and downstream functions in pituitary cells” by Rene Viñas and Cheryl S. Watson at the University of Texas.¹
The first interesting thing I noted is that this group looked at the effect of mixtures of xenoestrogens, not just the effect of one xenoestrogen, on rat cells. This is particularly important since we are not exposed to one xenoestrogen at a time. In fact, we are exposed to hundreds of these dangerous chemicals each day. We are bombarded with them the minute we walk out our front door. This study showed that the cells responded differently when exposed to multiple xenoestrogens at the same time as opposed to a single xenoestrogen.
Although that fact is enlightening, the most disturbing thing I learned from this article is about bisphenol A, or BPA. This xenoestrogen is used to make plastics and epoxy resins, and it can be found in a slew of consumer products. Examples include water bottles, thermal paper (such as sales receipts, cinema tickets, airline tickets), CD’s, and DVDs. It is also used extensively to line the inside of food and beverage cans. It is one of the highest volume chemicals made in the world today.
In the last ten years or so, the safety of BPA has come into question. Studies have shown that it is an endocrine-disruptor. In particular, it has been shown to interfere with estrogen receptors. Because of this concern, years of discussion ensued in governmental agencies worldwide leading to a ban of BPA use in the production of baby bottles and other products in children under the age of three. Today, some of these products are listed as “BPA-free”.
However, this study from the University of Texas pointed out that many “BPA-free” products now contain BPS, or bisphenol S. BPS is now being used as a substitute for BPA. Shockingly, this study shows that BPS is also an endocrine disruptor as it also interferes with estrogen receptors!! So, according to this study, “BPA-free” is NOT safe. As I continued to do my research, I noticed that a 2011 study stated “Almost all commercially available plastic products we sampled, independent of the type of resin, product, or retail source, leached chemicals having reliably-detectable EA [endocrine activity], including those advertised as BPA-free. In some cases, BPA-free products released chemicals having more EA [endocrine activity] that BPA-containing products.” ²
I was stunned! Next, I read a very long and excellent article on Wikipedia about Bisphenol A. I came to the conclusion that this chemical hasn’t been banned altogether because of lobbyists/politics. Here are some interesting (and infuriating) facts:
- The FDA considers BPA to be “safe at the current levels occurring in foods.” They base this statement on two studies funded by the chemical companies even though there are hundreds of other studies out there that show this chemical to be an endocrine disruptor.
- The FDA had previously stated that the benefits of good nutrition outweigh the risks of BPA exposure when it comes to infant formulas/food. Since that time, BPA has been banned in baby bottles in the U.S.
- In 2011, the governor of Maine, Paul LePage, actually made the following statement when discussing the issue of bisphenol A: “The only thing that I’ve heard is if you take a plastic bottle and put it in the microwave and you heat it up, it gives off a chemical similar to estrogen. So the worst case is some women may have little beards.” In April of that year, the Maine legislature passed a bill that banned the use of BPA in baby bottles and some reusable food containers. Governor LePage refused to sign it.
- In 2009, the EPA planned on labeling BPA as a “chemical of concern; however, after lobbyists for the chemical company met with members of the administration, this didn’t happen.
This is just the tip of the iceberg. I will get into much more detail in my upcoming book, but I felt the need to write a short blog on this topic now as to alert the general public about safety issues regarding BPA and so-called “BPA-free” products. After reading these articles, I have learned that virtually no plastic product is safe, regardless of what the government tells you.
The best advice I can give is to get away from processed food and go as fresh as possible. Organic is best. Try to stay away from canned foods as much as possible. It is important to note that we cannot avoid all xenoestrogens, but it is vitally important to reduce exposure as much as possible. This is particularly important for women who already suffer from estrogen-dependent diseases such as adenomyosis, endometriosis, and reproductive cancers.
Want more information on adenomyosis, an overview of endocrine-disrupting hormones, and tips to reduce your exposure? Check out my book, Adenomyosis: A Significantly Neglected and Misunderstood Uterine Disorder. Available on Amazon (Kindle or paperback).
¹Viñas, R. & Watson, C. (2013). Mixtures of xenoestrogens disrupt estradiol-induced non-genomic signaling and downstream functions in pituitary cells. Environmental Health Perspective. doi: 10.1186/1476-069X-12-26
²Walsh, B. (2011). “Study: Even ‘BPA-free’ plastics leach endocrine-disrupting chemicals”. Time. Retrieved 14 September 2016.