Do You Have Adenomyosis?

The following are symptoms commonly experienced by women with adenomyosis. Please note: Not all women will experience all symptoms. The most common symptoms are severe pelvic pain and heavy menstrual bleeding.

Symptoms

Painful menstrual bleeding (dysmenorrhea, can sometimes be as severe as the last stage of labor) – see page on dysmenorrhea for more detailed information.

Heavy menstrual bleeding (menorrhagia) – see page on menorrhagia for more detailed information.

Prolonged menstrual bleeding (8 to 14 days or more, also called menorrhagia) – see page on menorrhagia for more detailed information.

Bleeding between periods (spotting) or a continuous bloody discharge

Passing large blood clots

Chronic anemia due to excessive blood loss possibly leading to extreme fatigue and dizziness

Severe bloating due to enlarged, bulky or heavy uterus which often doubles or triples in size – see page on bloating for more detailed information.

Bleeding and/or pain during ovulation

Tenderness/pain during pelvic exam

Painful intercourse (dyspareunia) – see page on painful intercourse for more detailed information.

A “bearing down” sensation

Burning sensation in uterus

Heaviness in the legs

Leg and hip pain

Nausea and/or vomiting

Pressure on the bladder resulting in pain, frequent urination, interstitial cystitis, and other urinary tract issues

Painful bowel movements, diarrhea, and other GI disturbances during menstruation – see page on GI symptoms for more detailed information.

Lower back pain

Depression, anxiety, extreme mood swings, and other psychological issues

Infertility

Miscarriage

Brain fog

Migraine headaches

**Symptoms usually resolve after menopause because of lower estrogen levels in a woman’s body.

Important note:

Symptoms of adenomyosis can present as either a gastrointestinal problem or a urological issue. My symptoms were primarily gastrointestinal which led to the misdiagnosis of irritable bowel syndrome (IBS) for many, many years.

It is so important for general practitioners to be knowledgeable about this disorder since they are usually the first doctor a patient will see.  In addition, gastroenterologists and urologists need to be up-to-date on this disorder and work with gynecologists so the adenomyosis patient will get effective treatment.